Wednesday, February 24, 2021

Professor Jonathan Craig - BT4K Chairperson

Professor Jonathan Craig is the chairperson of the NSW Better Treatments 4 Kids (BT4K) network. He is a consultant physician in paediatric nephrology at the Children's Hospital at Westmead as well as being a Professor of Clinical Epidemiology at The University of Sydney in the School of Public Health.

Professor Craig's interests are in paediatric kidney disease, systematic reviews, diagnostic test assessments, common paediatric kidney problems such as urinary tract infection and vesicoureteric reflux. He is also interested in studying less common paediatric kidney problems such as kidney failure requiring haemodialysis and renal transplantation.

You can read more about Professor Craig, including his publications, at this site: The University of Sydney

Professor Adam Jaffe - BT4K Co-Chairperson

Professor Adam Jaffé is a Paediatric Respiratory Consultant at Sydney Children’s Hospital, Associate Director of Research for Sydney Children’s Hospitals Network, Randwick and the John Beveridge Professor and Head of the Discipline of Paediatrics at the University of New South Wales. Professor Jaffé trained partly in Sydney, but mostly in London and gained his thesis in Gene Therapy for Children with Cystic Fibrosis from Imperial College, University of London.

His research career centres around translational research specifically aimed at improving child health outcomes. His research interests lie in the areas of cystic fibrosis, empyema, asthma, childhood pneumonia and rare “orphan” lung diseases.

Read more: Professor Adam Jaffe - BT4K Co-Chairperson

Associate Professor Lisa Askie

Associate Professor Lisa Askie is a Senior Research Fellow, NHMRC Career Development Fellow and Associate Professor of Medicine at the Sydney Medical School and leads the Systematic Reviews and Health Technology Assessment team at the NHMRC Clinical Trials Centre.

Associate Professor Askie's clinical background is in perinatal medicine and she has worked in healthcare systems in Asia, Australia, the UK and USA. She has Masters and Doctoral qualifications in epidemiology.

Read more: Associate Professor Lisa Askie

Professor Robert Booy

Professor Robert Booy is Head of Clinical Research at the National Centre for Immunisation Research and Surveillance (NCIRS) located at the Kids Research Institute (Kerry Packer Building), situated next door to The Children's Hospital at Westmead, NSW Australia. He is a medical graduate of the University of Queensland (1984) and has previously held a range of positions in the UK.

Professor Booy researches severe infections including meningitis and encephalitis caused by pathogens such as Hib, pneumococcus, meningococcus, influenza and varicella. His investigative scope extends from understanding the genetic basis of disease susceptibility and severity to the clinical, public health, social and economic burden of infectious diseases; and means by which to prevent and/or control them through vaccines, drugs and non-pharmaceutical measures.

Read more about Professor Booy, including a listing of his publications, here: The University of Sydney.

Professor Chris Cowell

Professor Chris Cowell is Director of the Kids Research Institute, Westmead and Professor - Paediatrics & Child Health at the Children's Hospital at Westmead in Sydney, NSW. Professor Cowell's site hosts the BT4K Secretariat.

Professor Cowell's interests are in clinical insulin resistance and Type 2 diabetes and researching if new metabolic disorders in children are associated with the rise in obesity prevalence. His group is studying 1) the relationship between expression of adipocytokines and development of insulin resistance and 2) developing effective interventions by conducting randomised clinical trials.

You can read more about Professor Cowell, including a listing of his publications at this site: The University of Sydney

Professor Anne Cunningham

Professor Anne Cunningham is a Professor of Paediatrics in the School of Women's and Children's Health at the University of New South Wales, NSW, Australia. Professor Cunningham is also Director of the Developmental Neurosciences Program and Head of Laboratory Research at Sydney Children's Hospital, Randwick, NSW, Australia.

Professor Cunningham's areas of research interests are paediatric neuroscience including spinal cord injury and repair, sensory mechanisms, developmental neuroscience and adult neural stem cells.

You can read more about Professor Cunningham, including a listing of her publications, here: University of New South Wales

Professor Glenn Marshall

Professor Glenn Marshall is currently Director of the Kids Cancer Centre (KCC) at the Sydney Children's Hospital, Randwick (SCH), Head of the Molecular Carcinogenesis Program at the Children's Cancer Institute Australia, and conjoint Professor, School of Women and Children’s Health, Faculty of Medicine at UNSW. He has a major interest in the treatment of childhood leukaemia, neuroblastoma and bone tumours.

Professor Marshall has, for more than 20 years, researched the cause and therapy of childhood cancer diseases. He has published more than 100 original research articles on various biological and clinical aspects of child cancer and combines a busy clinical practice with supervising clinical, translational and basic research programs.

Read more: Professor Glenn Marshall

Professor John Simes

Professor John Simes is Senior Principal Research Fellow and founding director of the NHMRC Clinical Trials Centre. He co-leads a team of 150 who collaborate with clinical investigators and other researchers nationally and internationally in a research program aimed at improving health practice and health outcomes through better use of clinical trials research.

Professor Simes has taken leading roles in the establishment and growth of several collaborative trials groups, and has helped develop the clinical trials expertise of future leaders in the field through mentoring and teaching.

Professor Simes has contributed to over 300 peer-reviewed articles, with many having a significant impact on current knowledge and clinical practice.

Read more: Professor John Simes

Professor Joerg Mattes

Professor Joerg Mattes is a Paediatric Respiratory Physician (FRACP) based at John Hunter Children's Hospital, Newcastle, NSW. He provides specialist services as a consultant in paediatric respiratory medicine across the Northern NSW Child Health Network.

Professor Mattes is the Chair and Discipline Lead of Paediatrics & Child Health at the University of Newcastle and a Course Coordinator for the WACH Joint Medical Program Year 4. He is a translational researcher with internationally recognized expertise in both experimental and clinical paediatric respiratory medicine as well as a teacher with the vision to promote self-improving health care to children and their families through excellence in research & education.

Read more: Professor Joerg Mattes

Dr Elizabeth Kepreotes

Dr. Elizabeth Kepreotes is the Clinical Nurse Consultant in Paediatric Complex Pain at the John Hunter Children’s Hospital, Newcastle, and a Conjoint Lecturer at the University of Newcastle, NSW.

Dr Kepreotes is currently researching in the areas of moderate and severe bronchiolitis. Her other research interests include rare diseases of childhood, pain in Ehlers Danlos Syndrome, and the consumer experience of healthcare. She is an executive member of the Adolescents, Babies, and Children (ABC) Research Network of Northern NSW and serves on a number of research committees associated with the Hunter Medical Research Institute (HMRI).

Professor Ian Wright

Professor Ian Wright is the inaugural Professor of Paediatrics and Child Health Research at The University of Wollongong’s Graduate School of Medicine. He works within the Illawarra Medical Research Institute, a collaboration between UOW and the Illawarra health service. He also remains a Conjoint Professor in the Hunter Medical Research Institute of Newcastle University.

Professor Wright has pursued an interest in the physiology of the microcirculation, developing tools for study in the preterm infant and leading to new discoveries that could influence our understanding and treatment of the sick newborn in the future.  His research interests include all aspects of newborn care but focus primarily on the cardiovascular adaptation following preterm birth; for which he holds National Health and Medical Research Council (NHMRC) grants. He has received international recognition for projects on the effect of gender on neonatal cardiovascular adaptation.

Professor William Tarnow-Mordi

Professor William Tarnow-Mordi is Professor of Neonatology, Obstetrics, Gynaecology and Neonatology at the Westmead Clinical School, NSW.

Professor Tarnow-Mordi is interested in the areas of paediatric medicine, neonatal health, consumer involvement in clinical trial teams, biostatistics, infection and immunity, evidence-based medicine, trial concepts and design and international trial collaboration.

You can read more about Professor Tarnow-Mordi, including a list of his publications, here: The University of Sydney

Professor John Ziegler

Professor John Ziegler is Head the Department of Immunology and Infectious Diseases and of the HIV Service at Sydney Children’s Hospital, and is Professor of Paediatrics, University of NSW. He was cofounder of the Australasian Society for HIV Medicine, its first secretary and has served as President. He chairs the Immunoglobulin Users Advisory Group for NSW Health. He has served as consultant on perinatal transmission (breast feeding) of HIV to WHO in Geneva and on management of paediatric HIV in Malaysia and has been a UNICEF consultant on paediatric HIV to Indonesia.

Publications include more than 130 peer reviewed papers, invited papers and book chapters in clinical immunology, rheumatology, HIV medicine, paediatric pain, clinical trials, 14 reports for government and other bodies.

Read more: Professor John Ziegler

Vanessa Anderson - Consumer Partner

Vanessa Anderson has been in the Community Sector for 14 years and completed studies in Community Management and Community Services.  Vanessa splits her professional time between two organisations as she heads the Australian Chapter of the Batten Disease Support and Research Association and is employed by the Central Coast Disability office of Life Without Barriers. 

Her passion in this sector was inspired by her son’s journey with Batten Disease and the need for research into this non-curable rare disease.  The loss of her son 11 years ago has fuelled her interest in assisting ongoing research support in this area. Learn more about Batten disease at the Batten Disease website.

Katie Viviers - Consumer Partner

 Katie Viviers holds an MBA, as well as degrees in genetics and reproductive sciences. She is currently Head of Operational Improvement (Retirement Living) at Australian Unity. Katie’s early career experience in genetic counselling, and more recently as an advisory board member for the Australian Patients Association supplement her professional roles as an executive.

While Katie has had mostly positive (family-related) experiences with the Children’s Hospital Network, significant challenges have remained despite her knowledge and persistence in navigating the health system. Keen to put her skills to use, Katie is passionate about helping families and carers achieve positive health outcomes through service access, research and consultation on practice and policy.


Anne O'Neill

Anne O'Neill is an Associate Director in the Office for Health and Medical Research, NSW Ministry of Health.

Geoff Coleman

Geoff Coleman is Principal Policy Officer at Office for Science and Medical Research, NSW Ministry of Health.